Disabled people of Reddit. How does it make you feel when you speak to someone who has self diagnosed with your disability or mental health issue?

Disabled people of Reddit. How does it make you feel when you speak to someone who has self diagnosed with your disability or mental health issue?

What do you think?

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  1. With the terribly misconfigured health care system in America, I’m often more surprised when people do go to a doctor to get a diagnosis for something that isn’t urgent.

  2. I was self diagnosed for most of my life until I got decent insurance.

    That being said, it IS super frustrating when people minimize someone else’s experience because it does t line up with what they know (i.e “I have anxiety and my panic attacks are not that dramatic, you’re exaggerating”) or when they are calling very typical behaviors a disability (“I sometimes am overwhelmed too much stimulation so I have autism”).

  3. Fine with me except for sociopathy. Anyone who self-diagnoses as a sociopath is just a stupid tryhard loser looking for an edge. I( haven’t been diagnosed as one but that’s the only one I find annoying.

  4. Not a big issue for me. Capitalism has made mental health care so hard to access, including diagnosis. People are just trying to survive and understand what they heck is going on with them.

  5. People like to casually throw around the word “bipolar” and its really aggravating. Like no Janet your shitty boyfriend doesn’t have bipolar disorder, he’s just an asshole. Having a double espresso doesn’t make you “manic”. Being a bitch because you’re in a bad mood or sad about a breakup is not the same as the extreme, highly damaging and uncontrollable “mood swings” of my debilitating genetic mental disorder. Also, teenagers, it does not make you cool or interesting, nor will a reputable psychiatrist diagnose it at your age so shut up and go to therapy.

  6. I suffer from a very rare and incurable chronic illness which has led to me going blind. I don’t think people ever self-diagnose as being blind; firstly because it’s easy to tell whether someone is actually visually disabled and secondly because it’s not something anyone desires to be (quite the opposite, actually).

    That being said, one thing I do come across frequently is the hyperbolic use of the word “blind”, as in “without my contact lenses, I’m fucking blind.” This is indeed something that annoys me quite a lot if I’m honest. While I understand that words can be used figuratively, I still find it insulting and hurtful when people make statements like that. To me as a blind person, those statements come across as insufferably privileged. Firstly, NO, you’re not “fucking blind” without your contact lenses. Your vision may be very blurry etc. but compared to a legally blind person (let alone a functionally blind person such as myself) your eyes are still those of an eagle. The difference in eyesight is hard to even put into words and it frustrates me that sighted people who need glasses or contact lenses are not aware of that. For example if you’re eyesight without glasses/lenses is 15/20, you might think that’s abysmal because you compare yourself to those who’ve got perfect eyesight. However, my eyesight is somewhere around 0.3/20. In other words, even with your “shitty” eyesight without glasses/lenses, you can STILL see FIFTY TIMES better than me. Not 50%, 50 TIMES. That’s on the level of a comic book superhero. Can any sighted person even imagine what it’d be like to see, hear or smell 50 times better? I certainly can’t. I can imagine what it’s like to see double or triple as much as I do but not 50 times as much. So, again, NO, you’re not blind without your contact lenses – you’re still a fucking superhero.

    Secondly, one major feature that defines REAL blindness is that you can’t do anything about it. I can’t change my situation. I just have to suck it up and deal with it. This is completely different from being able to put on a pair of glasses and suddenly all your problems are solved. It’s a bit like claiming you have brain cancer but in reality it’s just a headache and taking an aspirin will take care of it. Some people who suffer from brain cancer will be pissed about someone with a headache claiming he/she has brain cancer – and rightfully so. It just feels so obnoxiously privileged and like the person doesn’t even reflect on their privileges.

    Saying “without my contact lenses I’m blind” is a bit like Jeff Bezos saying in a whiny voice: “Last year I lost 2 billion dollars, I’m practically homeless!” Any homeless person will know that NO, if you own 198 instead of a 200 billion dollars, you’re not homeless. In fact, you’ve got no fucking clue what it’s like to be homeless.

  7. I don’t really care, it’s not a competition

    Besides it’s not always possible for someone to get a formal diagnosis, even if an issue is pretty clear

  8. I really dislike it. I am autistic and self diagnosed people create all kinds of problems and expectations in our community that further makes life harder. Get the diagnosis it’s not hard.

  9. it makes me feel great, actually. we can share our experiences and ask each other questions, and if they want I could try and help them on the path to a professional diagnosis. people often know themselves best, it’s better to give the benefit of the doubt that show hostility or shun people who may be genuinely struggling.

  10. I remember I realised I was celiac and I hated when other people would use it for attention. A full 6 months I’d ask what the celiac option was and then other people would too. It annoyed me so much. As luck would have it my celiac problem sorted itself out. I thought I was finally healthy then bam, dairy allergy just developed overnight.

    I have to say I’ve had my low points but the price of soy milk keeps the fakers away. The only time I can manage normal milk now is with my cereal in the morning and maybe a glass with cookies at night but I can’t even attempt a late or flat white without soy milk. I will get so sick, its not even funny.

  11. Well the only one I ever talk about it anxiety, and it’s hard to know if someone really self diagnosed. I think everyone has a bit of anxiety (just like everyone has a depression sometimes), but there’s just different levels of it. When you get diagnosed with anxiety or depression I think it’s basically you’re being told “your anxiety / depression is impacting your life in a way that needs to be changed”.

    That being said it doesn’t upset me when people say they have anxiety because I just think everyone does, I just know that my level is more severe then most and is life impacting.

    Idk if this makes sense at all.

  12. It’s fine. I understand the struggle to be diagnosed and heard in medical systems. As long as they’re actually doing in depth, real research, rather than a surface level could-be-anything diagnosis, or looking into it for some kind of brownie point or “””benefit,””” good on them. I hope they get the support they need.

  13. If we’re in the US, don’t care. If they’re experiencing symptoms and either can’t afford a doctor or can’t find a doctor who will listen, self-diagnosis is often the only way forward.

    I spent years fighting to find a doctor who would look at my symptoms as anything other than weight based. Finally getting my chronic pain diagnosis was life changing. But some people don’t have the access or the luck to find a medical professional that will dig a little deeper.

    Do what you gotta do to survive. My pain isn’t made less or cheapened by someone else saying their pain has the same root.

  14. I have 0 issue as long as they aren’t “flexing” it or trying to “act cool”. I know how hard it is to even attempt to be recognised by the mental health care system let alone diagnosed

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